Mason is still in surgery, but we have some news about the procedures so far.
1. He was sedated with gas and after a "few tries" got IV (we'll only know how many that is when he gets out)
2. His scope test showed nothing unusual (as for reasons why his Mickey buttons may be popping so often; the only explanation may be the size/shape of the balloon being too big for his stomach (which is smaller than average) so we will stick with the other type of balloon; if we continue to have trouble we could switch to a non balloon (we are hoping not to have to do this as it often requires surgery to change them, etc)
3. THE HEARING TEST: the results of the ABR are back, and somewhat surprising to us. He has mild to moderate hearing loss symmetrically in both ears, despite the ear tubes. One of the tubes seemed possibly clogged with wax so the ENT will have to check that, but the other looked clear, and was showing the same loss. This means that although Mason can hear, he may not be hearing well enough to learn language effectively and hear in a meaningful enough way given his vision impairment. They have referred us to three "schools for the deaf" in the area to get hearing aids for him through First Steps. Please pray for us as this is a whole new area that we have very little experience in (thankful for good friends like Katy T and others who have great knowledge in this area!!). We are hoping this support could potentially help him a lot with his development if the hearing aids and early intervention make a big difference for him. He really really wants to communicate and we want to help him any way we can!!
He is still out for his other procedure (not laparoscopic as I first thought it would be but just "small incisions"). They told us he very well may get Fentanyl before he wakes up so please especially pray as he nears the end of these that he will remain comfortable throughout his recovery without complications. Thank you for all the prayers already going up !! :D We love you all!!
Our family's journey with deaf-blindness, multiple disabilities and undiagnosed genetic disease...stories, updates, mental notes and spiritual reminders to help our family stay grounded in faith and focus on the facts as we navigate the mysteries and uncertainties of our little boy's health.
We are definitely praying for little Mason and that he is not in much pain when he comes to. He is such a strong boy and I really hope one day Nick and Mason can meet and be the best of friends!!
ReplyDeleteKeep us updated and we are thinking of all of you!!